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Tools: Useful Websites
In this section we include both websites that are of professional interest and sites that might be useful for patients and patient education.
| Consumer/Education/Advocacy | These sites have information that might be of interest to professionals but are oriented toward non-professionals. | ||||||||||||||||||
To support and educate individuals struggling with chronic pain as patients and/or caregivers. To raise awareness among the health care community, policy makers and the general public about the issues of living with chronic pain.
An advocacy and education organization in support of caregivers. It provides a wide variety of education materials and works with policy makers to improve support for family caregivers.
A coalition of organizations that exists to actively support people with neuropathic pain by raising awareness and educating those organizations who have the ability to impact the treatment (by society and medical management) of people with neuropathic pain.
To promote greater awareness of CRPS/RSD and to fund research into more effective treatments and a cure.
An educational, visual arts exhibit from artists with chronic pain with their art expressing some facet of the pain experience. The mission of the PAIN Exhibit is to educate healthcare providers and the public about chronic pain through art; and to give voice to the many who suffer in abject silence. |
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| Pain/Palliative Care | Sources for information about pain, pain management, palliative care and caregiving. | ||||||||||||||||||
Information on developing hospital based palliative care programs.
A large number and variety of tools for practitioners as well as bibliographies related to particular patient groups, (e.g. pediatrics, geriatrics), protocols and policies.
This web resource is particularly focused on the challenge of managing chronic pain with the challenges of risk containment for opioid misuse, abuse and addiction associated with medical prescribing and the use of controlled substances. It is described as an ongoing educational initiative developed to address some of today’s most critical issues in pain management. Through evidence-based scientific data, validated tools, and the expertise of a cadre of leading pain and addiction medicine experts, the ESP program provides clinicians with guidance in the implementation of good practice management techniques. Site features and programs emphasize favorable interaction with regulatory and law enforcement agencies, as well as effective assessment, monitoring and documentation strategies; all of which contribute to the overall goal of optimizing outcomes for patients in pain. A number of well know pain specialists are among its board and advisory board members
Of particular interest is the series of "Fast Facts," that provide easily accessible guidance to practitioners dealing with end of life/palliative medicine problems.
This website is sponsored by the Center to Advance Palliative Care. It provides very useful handouts for patients and families, which explain palliative care and what it can do for them. It also has a very helpful one-page check list for clinicians, which describes the general referral criteria for palliative care to help determine whether a palliative care consultation might be beneficial. The Center to Advance Palliative Care website provides additional information and resources for professionals.
Consensus guidelines for palliative care developed by a consortium of palliative care experts.
This site lists an enormous number of websites dealing with pain and pain and disease issues.
A program of the Department of Pain Medicine and Palliative Care at Beth Israel Medical Center, NYC. In addition to information on pain, palliative care and caregiver support for consumers, the site provide CME courses for physicians and nurses.
An educational, visual arts exhibit from artists with chronic pain with their art expressing some facet of the pain experience. The mission of the PAIN Exhibit is to educate healthcare providers and the public about chronic pain through art; and to give voice to the many who suffer in abject silence |
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| Policy/Legal | These sites focus on legal and policy issues that affect treatment of pain and the provision of palliative care. | ||||||||||||||||||
A multidisciplinary organization of state pain initiave organizations working to removed barriers to appropriate pain management.
Policy studies center at the University of Wisconsin that tracks legislation and other aspects of state and federal policies that affect pain management.
A project of the Center for Health Law Studies at St. Louis Univeristy and the American society of Law, Medicine and ethics. It explores the consequences of law and policy on pain management practices. |
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| Professional Societies | Organizations for professionals in emergency medicine as well as pain and palliative care. | ||||||||||||||||||
Membership organization for emergency medicine specialists. Publishes Journal of Emergency Medicine.
A medical specialty society representing physicians practicing in the field of Pain Medicine. Publishes Pain Medicine.
A professional membership organization. Publishes Annals of Emergency Medicine.
A multidisciplinary membership organization to advance the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering. Publishes The Journal of Pain.
A membership organization open to professionals involved in pain research or the diagnosis and treatment of pain. Publishes the journal Pain.
A membership organization to advance research and education in emergency medicine. Publishes Academic Emergency Medicine. |
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| Research | Of particular interest to pain and emergency medicine researchers. | ||||||||||||||||||
A privately developed website to improve online access to biomedical information in fields such as neuroscience, pharmacology, and psychology. The home page link is www.neurotrasmitter.net. The following link is to Drug Reference for FDA Approved Opioid Drugs page. It includes suggestions of possible mechanisms of action and views of chemical structures, links to prescribing information and additional sources of information.
The NIH Pain Consortium was established to enhance pain research and promote collaboration among researchers across the many NIH Institutes and Centers that have programs and activities addressing pain.
Seeks to promote children's health through Evidence-Based research in therapeutics in Pediatric Emergency Medicine.
A searchable database of over 30,000 references related to Cancer Pain and Palliative Care. |
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